Sunday, July 29, 2012
Maureen's blog: Fatigue
Maureen's blog: Fatigue: It is only by God's grace and mercy that I am here today. After my trip to Ireland it has left me feeling very fatigued with aching muscle...
Saturday, July 21, 2012
Fatigue
It is only by God's grace and mercy that I am here today.
After my trip to Ireland it has left me feeling very fatigued with aching muscles especially in my legs. I have continued going to the toning suite for gentle exercises.
The last week has been very busy and I have not been able to sleep for more than five to four hours each night.
I have continued to vomit at the end of each day but I am continuing to thank God for the strength I need for each day.
On Tuesday I will be going to have Oesophageal Manometry test and 24 Hour pH Monitoring done. This is to check if there is any muscle damage to my oesophagus (the consultant thinks the lupus has damaged the muscles in my oesophagus).
I am praying the test will not be too distressing, as I will have to have a nasal gastric tube with a camera passed down my nose to my oesophagus to my stomach.
God is my helper and my strength and an ever present help in times of trouble. I am putting my faith in Him, knowing that no matter how I may feel He is still with me.
After my trip to Ireland it has left me feeling very fatigued with aching muscles especially in my legs. I have continued going to the toning suite for gentle exercises.
The last week has been very busy and I have not been able to sleep for more than five to four hours each night.
I have continued to vomit at the end of each day but I am continuing to thank God for the strength I need for each day.
On Tuesday I will be going to have Oesophageal Manometry test and 24 Hour pH Monitoring done. This is to check if there is any muscle damage to my oesophagus (the consultant thinks the lupus has damaged the muscles in my oesophagus).
I am praying the test will not be too distressing, as I will have to have a nasal gastric tube with a camera passed down my nose to my oesophagus to my stomach.
God is my helper and my strength and an ever present help in times of trouble. I am putting my faith in Him, knowing that no matter how I may feel He is still with me.
Tuesday, July 10, 2012
Maureen's blog: Trip to Ireland
Maureen's blog: Trip to Ireland: Went to bed early this am (02:00) because I had tea with caffeine instead of my usual Red Bush caffeine free tea. I was up and awake just af...
Saturday, June 30, 2012
Trip to Ireland
Went to bed early this am (02:00) because I had tea with caffeine instead of my usual Red Bush caffeine free tea. I was up and awake just after 06:30.
I am now sitting on a ferry, crossing from the UK to Southern Ireland (it is Saturday the 30th June). For the first time being on a boat or ship I am feeling nauseous and I am having the same feeling as if I am in an aeroplane. Just praying I will not need to go to the bathroom in a hurry as I cannot rush to get there.
We arrived safely in the County of Kilkenny at our hotel overlooking the river just before 8pm. I feel so tired and could not wait to vomit, this is the only way the belching and hiccuping will stop (I have been experiencing this for a few hours now).
Sunday and Monday we did a little sight seeing and window shopping and then slept the rest of the afternoon. I felt very fatigued and my body especially my legs ached a lot.
The vomiting is continuing and is very distressing
Tuesday we arrived in County Cork at our hotel in the middle of the city centre. I am still very tired and fatigued. And vomiting after my meals.
Wednesday we went sight seeing to a pretty village with quaint little side streets. Even though it as a very small port just walking round the little streets was far too much for me. I stayed in a cafe whilst Bob went to explore.
Thursday we went shopping in Cork and back to the hotel for a rest.
Friday we went on a coach trip to the West of Cork. It was very beautiful but we had to be up early for that and of course I did not sleep most of the night. I am feeling so tired and my legs are aching so much. We went on a ferry to a little Island to look at some wonderful gardens but it was very difficult and painful for me to walk around.
Saturday I am awake early with awful chest pain. After breakfast we left County cork for Rosslare to catch the ferry back to the UK early Sunday morning.
I have been home now since Sunday night but the holiday (vacation)has left me feeling very exhausted, I am fatigued with dizziness and now headache and mouth ulcers.
Thank you Lord for your love, faithfulness, and mercy, without you I would not be able to breathe. I am so grateful for your love and peace during this storm in my life.
I am now sitting on a ferry, crossing from the UK to Southern Ireland (it is Saturday the 30th June). For the first time being on a boat or ship I am feeling nauseous and I am having the same feeling as if I am in an aeroplane. Just praying I will not need to go to the bathroom in a hurry as I cannot rush to get there.
We arrived safely in the County of Kilkenny at our hotel overlooking the river just before 8pm. I feel so tired and could not wait to vomit, this is the only way the belching and hiccuping will stop (I have been experiencing this for a few hours now).
Sunday and Monday we did a little sight seeing and window shopping and then slept the rest of the afternoon. I felt very fatigued and my body especially my legs ached a lot.
The vomiting is continuing and is very distressing
Tuesday we arrived in County Cork at our hotel in the middle of the city centre. I am still very tired and fatigued. And vomiting after my meals.
Wednesday we went sight seeing to a pretty village with quaint little side streets. Even though it as a very small port just walking round the little streets was far too much for me. I stayed in a cafe whilst Bob went to explore.
Thursday we went shopping in Cork and back to the hotel for a rest.
Friday we went on a coach trip to the West of Cork. It was very beautiful but we had to be up early for that and of course I did not sleep most of the night. I am feeling so tired and my legs are aching so much. We went on a ferry to a little Island to look at some wonderful gardens but it was very difficult and painful for me to walk around.
Saturday I am awake early with awful chest pain. After breakfast we left County cork for Rosslare to catch the ferry back to the UK early Sunday morning.
I have been home now since Sunday night but the holiday (vacation)has left me feeling very exhausted, I am fatigued with dizziness and now headache and mouth ulcers.
Thank you Lord for your love, faithfulness, and mercy, without you I would not be able to breathe. I am so grateful for your love and peace during this storm in my life.
Friday, June 29, 2012
Maureen's blog: Another Lupus Flare
Maureen's blog: Another Lupus Flare: Felt very fatigued last week with aches and pains all over my body. I still carried on doing the things I usually do such as going to the to...
Tuesday, June 26, 2012
Another Lupus Flare
Felt very fatigued last week with aches and pains all over my body. I still carried on doing the things I usually do such as going to the toning suite for gently exercise.
The weekend started with diarrhoea but thank God it did not last for more than a day.
More aches and pains but I know it is only a flare up of the lupus symptoms. So I am ignoring them and just learning to know my limitations as to what I can and cannot do at these times.
Monday and the dreaded mouth ulcers are back. This time inside my lower lip which is making it difficult to have hot drinks or even eat anything hot.
Went to see the Rheumatologist today and forgot to tell him about the mouth ulcers and blood blisters I keep getting. I think the mention of more chemotherapy caused me to have temporary brain freeze. Any I decline the offer of more chemo for the present. If my breathing worsens during the next four months then I will have no choice but to have more chemo (it has helped with my breathing as I really though I was going to need lung transplant or oxygen).
I am trusting God for my healing and His help each day. He has promised never to leave me so no matter what or how I feel He is still there in charge.
The weekend started with diarrhoea but thank God it did not last for more than a day.
More aches and pains but I know it is only a flare up of the lupus symptoms. So I am ignoring them and just learning to know my limitations as to what I can and cannot do at these times.
Monday and the dreaded mouth ulcers are back. This time inside my lower lip which is making it difficult to have hot drinks or even eat anything hot.
Went to see the Rheumatologist today and forgot to tell him about the mouth ulcers and blood blisters I keep getting. I think the mention of more chemotherapy caused me to have temporary brain freeze. Any I decline the offer of more chemo for the present. If my breathing worsens during the next four months then I will have no choice but to have more chemo (it has helped with my breathing as I really though I was going to need lung transplant or oxygen).
I am trusting God for my healing and His help each day. He has promised never to leave me so no matter what or how I feel He is still there in charge.
Sunday, June 17, 2012
Maureen's blog: Folliculitis
Maureen's blog: Folliculitis: I just want to thank God for sustaining and keeping me strong and sane each day, without His strength I know I would surely fall apart. It...
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