Wednesday, October 10, 2012

Chemotherapy

After waiting for over an hour after my appointment time I was finally called into the day unit for the chemotherapy treatment.

Of course several checks had to be made with the doctors. The nurses checked my address and date of birth several times before the chemo could be administered.

Whilst receiving the chemo I went very light headed especially when I held my head down. The flow of the chemo had to be slowed and I was offered a hot drink, which then left me feeling quite nauseous (even though I was given an anti emetic drug).

I then started to feel as if I was in a swimming pool and the water had gone up my nose (I started to have burning in my nostrils).

Still felt very light headed and weak after the infusion.

It is now after midnight and I am vomiting, just hoping it isn't going to carry on for long. (I was given an anti emetic tablet to take at 8 pm along with another tablet to stop the chemo damaging my bladder but I am not sure if it did not come back up as everything I try to swallow stays in my oesophagus for hours before going down into my stomach.

I had a very disturbing night could did not sleep well as I felt awful. I awoke early and was out of bed by 06:15 to have a drink as I have to drink a lot. Decided to read the bible and pray and just to give thanks for my life and everything around me. Thank you Lord

Wednesday, October 3, 2012

Maureen's blog: Hospital Visit

Maureen's blog: Hospital Visit: I waited three hours yesterday to have the chemotherapy but was told I could not have it as the doctor had written for me to have it over 4-...

Hospital Visit

I waited three hours yesterday to have the chemotherapy but was told I could not have it as the doctor had written for me to have it over 4-5 hours.
Because the nurses did not have me in on time they could not give me the chemo as the department closes at 7pm and it was now about 5pm.

The nursing sister did speak to a doctor as she thought I could have it for two hours instead but unfortunately my blood pressure was raised so they could not risk me having too much fluid that could flood my heart.

I have been feeling so ill and my breathing is just getting worst each day. I am in away glad I did not have the chemo. Today I feel so exhausted, tired with Backache but I have to be thankful I am still alive.

Thank you Lord for carrying me as you know right now I cannot carry myself.



I went to the hospital yesterday for the chemotherapy infusion only to be sent home after waiting three hours

Thursday, September 27, 2012

Maureen's blog: Consultants visits

Maureen's blog: Consultants visits: Went to the hospital on Monday to see the Gastroenterologist regarding the ma nometry and 24 hour pH test I had. The muscles in my oesophagu...

Friday, September 21, 2012

Consultants visits

Went to the hospital on Monday to see the Gastroenterologist regarding the ma nometry and 24 hour pH test I had. The muscles in my oesophagus have been weakened because of the lupus and I have a moderate amount of acid reflux.

The consultant has decided that there is not much can be done I will have to cope with it (the constant vomiting).
If I was loosing weight or could not swallow I would have to have a feeding tube inserted into my stomach (called pep)
via my abdomen, which would be left in for me to be fed only liquid.

On Tuesday I went to see my Rheumatologist because I have been feeling awful again with aches and pains and fatigue, also breathlessness

My Rheumy has decided I should have another three Chemotherapy treatment as it did help to improve my breathing.

I have now been given the appointment for the infusion next week. I will have to go and have a blood test the day before.

My body is still aching and I am not having enough sleep so I am feeling very exhausted. I have to give thanks to God for sparing my life and carrying me each day, because with Him I would surely fall apart.

Maureen's blog: Antibiotics

Maureen's blog: Antibiotics: The last few weeks have not been good and without the help of Jesus, friends and family to carry and support me I don't know how I would hav...

Antibiotics

The last few weeks have not been good and without the help of Jesus, friends and family to carry and support me I don't know how I would have managed.

I have been feeling so ill over the last few weeks with aches and pains, sinusitis and a cold. I went to see my GP who gave me antibiotics and told me I am suffering from hay fever even though I haven't been out doors for about two week prior to seeing her.

The antibiotics did get rid of the sinusitis but not the cold or the aches and pains. Now I have a constant tickle in my throat and I am forever coughing and clearing my throat especially when I talk.

I am taking over the counter medications for this cold and now I am asleep more than I am awake (it could also be because I have been feeling very exhausted for the pass few weeks). Which is also fatigue, part of the symptom of lupus.

Right now I feel I want to scream as I can't get rid of the tickle in my throat and my head and body is aching so much. Oh! And I want to sleep.

So please help me Jesus I know you have been good to me and you have promise never to leave me or forsake me. I think I will go and get a hot drink and hope this will help my throat.