Visited a friend who is receiving chemotherapy today (wednesday). We had lunch together which I took for us to have.
It was a fairly good day but I felt quite shaky again when I got home.
Everything that I ate and drank today is stuck in my oesophagus again so I am hiccuping and belching again.
I have also got more mouth ulcers appearing once again, this has been happening more since I had chemotherapy last year.
Today (Thursday) was a good day, hot and sunny. Spring is here at last!
I actually went and opened the gate for the window cleaners, which they were surprised that I could do without getting breathless (I usually give them the key to lock and unlock the gate).
I have to thank God for is love and mercy in sustaining me throughout this illness.
Wednesday, February 29, 2012
Tuesday, February 28, 2012
Maureen's blog: Vomiting
Maureen's blog: Vomiting: Went to bed late last night after a lot of vomiting, everything I eat or drink is getting stuck in my oesophagus again. Got up early this m...
Maureen's blog: Vomiting
Maureen's blog: Vomiting: Went to bed late last night after a lot of vomiting, everything I eat or drink is getting stuck in my oesophagus again. Got up early this m...
Monday, February 27, 2012
Vomiting
Went to bed late last night after a lot of vomiting, everything I eat or drink is getting stuck in my oesophagus again.
Got up early this morning (Monday) I was in a lot of pain whilst in bed but most of the pain went when I got out of bed.
The afternoon started off well, I visited my prayer partner we had lunch and a good time together praying.
The vomiting has once again started and continued until bedtime.
Today (Tuesday) after a good nights sleep, I got up early and tidy one of my bedroom cupboard and now I am feeling very shaky.
It is now about an hour after having my dinner and it's up again (I have decided to eat the things I fancy) and forget eating healthy.
Got up early this morning (Monday) I was in a lot of pain whilst in bed but most of the pain went when I got out of bed.
The afternoon started off well, I visited my prayer partner we had lunch and a good time together praying.
The vomiting has once again started and continued until bedtime.
Today (Tuesday) after a good nights sleep, I got up early and tidy one of my bedroom cupboard and now I am feeling very shaky.
It is now about an hour after having my dinner and it's up again (I have decided to eat the things I fancy) and forget eating healthy.
Sunday, February 26, 2012
Maureen's blog: After going to bed late on Friday night and feelin...
Maureen's blog: After going to bed late on Friday night and feelin...: After going to bed late on Friday night and feeling very stressed, I eventually had a good nights sleep. When I got up Saturday morning I h...
After going to bed late on Friday night and feeling very stressed, I eventually had a good nights sleep.
When I got up Saturday morning I had a long soak in the bath to help me relax.
Had a good day but vomiting again at bed time.
Slept very well again last night.
I went to church today but I was very cold so I am just praying this won't have any effect on my body (the cold).
The rest of the day has been very good and relaxing.
When I got up Saturday morning I had a long soak in the bath to help me relax.
Had a good day but vomiting again at bed time.
Slept very well again last night.
I went to church today but I was very cold so I am just praying this won't have any effect on my body (the cold).
The rest of the day has been very good and relaxing.
Saturday, February 25, 2012
Maureen's blog: Fatigued
Maureen's blog: Fatigued: Had a lazy day yesterday (I was feeling very fatigued). A friend came to visit and we had a wonderful time chatting and praying. Today Frid...
Friday, February 24, 2012
Fatigued
Had a lazy day yesterday (I was feeling very fatigued). A friend came to visit and we had a wonderful time chatting and praying.
Today Friday I am not feeling too good very fatigued again.
I have been awake since 06:00 my body was aching Whilst in bed so I have been up very early.
Went out with my son for an appointment he had. I went to visit my 95 year old friend who was very confused when I got there, she had taken her medications for the day and night and could not remember taking them. Spent the time ringing her son and explains that she cannot take anymore Meds until tomorrow.
This has left me feeling even more fatigued and stressed.
Started vomiting again last night before going to bed.
Today Friday I am not feeling too good very fatigued again.
I have been awake since 06:00 my body was aching Whilst in bed so I have been up very early.
Went out with my son for an appointment he had. I went to visit my 95 year old friend who was very confused when I got there, she had taken her medications for the day and night and could not remember taking them. Spent the time ringing her son and explains that she cannot take anymore Meds until tomorrow.
This has left me feeling even more fatigued and stressed.
Started vomiting again last night before going to bed.
Wednesday, February 22, 2012
Maureen's blog: Vomiting again
Maureen's blog: Vomiting again: Had a good day (Tuesday) and went out to buy flowers for a friend. It's now night and I am vomiting again. The lupus rash is back on my fa...
Tuesday, February 21, 2012
Vomiting again
Had a good day (Tuesday) and went out to buy flowers for a friend.
It's now night and I am vomiting again.
The lupus rash is back on my face at the sides of my nose which is quite itchy and painful.
Got up this morning feeling quite energetic, I decided to tidy the utility room which has now brought on fatigue. I had to stop and sit down as I felt very faint and worn out (I have to learn to leave things alone and know my limitations).
I am not feeling well, backache and general malaise (hoping and praying it is not a flare up of the lupus).
It's now night and I am vomiting again.
The lupus rash is back on my face at the sides of my nose which is quite itchy and painful.
Got up this morning feeling quite energetic, I decided to tidy the utility room which has now brought on fatigue. I had to stop and sit down as I felt very faint and worn out (I have to learn to leave things alone and know my limitations).
I am not feeling well, backache and general malaise (hoping and praying it is not a flare up of the lupus).
Monday, February 20, 2012
Maureen's blog: Mouth ulcers
Maureen's blog: Mouth ulcers: Went to bed early on Saturday night because I felt very tired and ill, slept well. Woke up early morning with dry painful eyes (I haven't b...
Sunday, February 19, 2012
Mouth ulcers
Went to bed early on Saturday night because I felt very tired and ill, slept well.
Woke up early morning with dry painful eyes (I haven't been able to put a lot of lubricants in my eyes) because I slept for a few hours without waking.
This is Sunday and my left eye is very painful and now I have ulcers in the roof of my mouth.
Spent most of the day putting artificial tears into my eyes to try and lubricate them, they had become dry and sore during the night.
I have the added problem with dry mouth and now ulcers (I have to drink a lot or chew gum to keep my mouth moist), with the ulcers it can be very uncomfortable to have hot drinks).
Went to bed at 24:00 and got up at 02:30 stayed up until 06:00. Fell asleep about 08:30 for about an hour.
Today (Monday) went well felt very tired all day so I will go to bed early and praying I will stay asleep all night.
Whilst eating my dinner felt more mouth ulcers, this time on my tongue.
Woke up early morning with dry painful eyes (I haven't been able to put a lot of lubricants in my eyes) because I slept for a few hours without waking.
This is Sunday and my left eye is very painful and now I have ulcers in the roof of my mouth.
Spent most of the day putting artificial tears into my eyes to try and lubricate them, they had become dry and sore during the night.
I have the added problem with dry mouth and now ulcers (I have to drink a lot or chew gum to keep my mouth moist), with the ulcers it can be very uncomfortable to have hot drinks).
Went to bed at 24:00 and got up at 02:30 stayed up until 06:00. Fell asleep about 08:30 for about an hour.
Today (Monday) went well felt very tired all day so I will go to bed early and praying I will stay asleep all night.
Whilst eating my dinner felt more mouth ulcers, this time on my tongue.
Saturday, February 18, 2012
Maureen's blog: Abdominal pains
Maureen's blog: Abdominal pains: Went to bed late last night (Wednesday ) because I kept vomiting. It all started with hiccups and belching as the food I had eaten during th...
Thursday, February 16, 2012
Abdominal pains
Went to bed late last night (Wednesday ) because I kept vomiting. It all started with hiccups and belching as the food I had eaten during the day was once again stuck in my oesophagus.
Woke up this morning in a lot of pain but once I got out of bed the pain eased. Went to visit a friend in the afternoon had a really good time.
Went to bed late on Thursday night because I was once again vomiting.
Got up early on Friday morning for the gardener and an appointment my son had.
I went to visit one of my elderly neighbour in the afternoon (she is 83 years old), we both had this dreadful cold so it was the first time since just before Christmas I have been able to visit her.
After going to bed at 01:00 I was wide awake very early at 05:00 in a lot of abdominal pain, I decided to get out of bed to read and pray.
Despite the pain and frequency to the bathroom I actually went out to the indoor athletics meeting in Birmingham (at the NIA) today.
Hoping I haven't caught gastric flu from my husband, who had it during the week.
Woke up this morning in a lot of pain but once I got out of bed the pain eased. Went to visit a friend in the afternoon had a really good time.
Went to bed late on Thursday night because I was once again vomiting.
Got up early on Friday morning for the gardener and an appointment my son had.
I went to visit one of my elderly neighbour in the afternoon (she is 83 years old), we both had this dreadful cold so it was the first time since just before Christmas I have been able to visit her.
After going to bed at 01:00 I was wide awake very early at 05:00 in a lot of abdominal pain, I decided to get out of bed to read and pray.
Despite the pain and frequency to the bathroom I actually went out to the indoor athletics meeting in Birmingham (at the NIA) today.
Hoping I haven't caught gastric flu from my husband, who had it during the week.
Wednesday, February 15, 2012
Maureen's blog: Blood Blister
Maureen's blog: Blood Blister: Today Monday the weather changed from being very cold to warm. A friend came to visit me and it was good to have company for a few hours. ...
Monday, February 13, 2012
Blood Blister
Today Monday the weather changed from being very cold to warm.
A friend came to visit me and it was good to have company for a few hours.
Another blood blister is back this time in my left cheek.
Because I am not feeling drugged I have more energy and moved from the bathroom to the bedroom quickly which caused me to be short of breath and coughing to get the oxygen back into my blood. This has not happened for a few days turning into weeks now.
Had a great day and dinner for valentine (the dinner did not stay down).
I was up until 03:00 before going to bed.
Today I went to visit and have lunch with a friend.
I have now had my dinner and I am belching and feeling uncomfortable because my dinner is stuck once again in my oesophagus.
The blood blisters have left my cheeks feeling very sore especially when I have hot drinks.
Tomorrow is another day so I can't wait to see what it will bring.
A friend came to visit me and it was good to have company for a few hours.
Another blood blister is back this time in my left cheek.
Because I am not feeling drugged I have more energy and moved from the bathroom to the bedroom quickly which caused me to be short of breath and coughing to get the oxygen back into my blood. This has not happened for a few days turning into weeks now.
Had a great day and dinner for valentine (the dinner did not stay down).
I was up until 03:00 before going to bed.
Today I went to visit and have lunch with a friend.
I have now had my dinner and I am belching and feeling uncomfortable because my dinner is stuck once again in my oesophagus.
The blood blisters have left my cheeks feeling very sore especially when I have hot drinks.
Tomorrow is another day so I can't wait to see what it will bring.
Sunday, February 12, 2012
Maureen's blog: Vomiting again
Maureen's blog: Vomiting again: Vomiting started again on Friday night. Today Saturday is very cold outside, went out briefly to the shop, the sun was shining but the weat...
Saturday, February 11, 2012
Vomiting again
Vomiting started again on Friday night.
Today Saturday is very cold outside, went out briefly to the shop, the sun was shining but the weather remains very cold, still it was good to be out in the fresh air, I was wrapped up well as if I was going to the north pole.
Felt more ulcers in my mouth and slight headache.
I didn't have breakfast just lunch a snack then dinner and it is up again.
Had a great night's sleep last night even though it was very cold outside it was lovely and warm in bed. The central heating was left on low (wonderful) if only we didn't have to pay for the heating.
Today is Sunday and the ulcers in my mouth haven't gone away.
Just praying that my dinner is going to stay down.
Today Saturday is very cold outside, went out briefly to the shop, the sun was shining but the weather remains very cold, still it was good to be out in the fresh air, I was wrapped up well as if I was going to the north pole.
Felt more ulcers in my mouth and slight headache.
I didn't have breakfast just lunch a snack then dinner and it is up again.
Had a great night's sleep last night even though it was very cold outside it was lovely and warm in bed. The central heating was left on low (wonderful) if only we didn't have to pay for the heating.
Today is Sunday and the ulcers in my mouth haven't gone away.
Just praying that my dinner is going to stay down.
Friday, February 10, 2012
Maureen's blog: Backache
Maureen's blog: Backache: I decided to go to bed early last night because I was feeling very tired. Went to bed and started to read, which then kept me awake. It was...
Backache
I decided to go to bed early last night because I was feeling very tired. Went to bed and started to read, which then kept me awake.
It was very cold outside which made my bedroom cold even with the central heating on.
My bones started to ache especially my back (which also felt as if I have ice placed on my back).
I had to get out of bed to have a hot drink and end up staying up until 03:00.
I woke up early this morning at 06:00 but did not get out of bed until after 09:00.
My bones and back are still aching and I am just starting to get warm now that I am out of bed and moving about.
My right cheek is still sore because of the blood blisters that developed last weekend.
Praying this weekend will be a good one (it is going to be very cold so I am staying indoors again).
It was very cold outside which made my bedroom cold even with the central heating on.
My bones started to ache especially my back (which also felt as if I have ice placed on my back).
I had to get out of bed to have a hot drink and end up staying up until 03:00.
I woke up early this morning at 06:00 but did not get out of bed until after 09:00.
My bones and back are still aching and I am just starting to get warm now that I am out of bed and moving about.
My right cheek is still sore because of the blood blisters that developed last weekend.
Praying this weekend will be a good one (it is going to be very cold so I am staying indoors again).
Tuesday, February 7, 2012
Maureen's blog: Blood Blisters
Maureen's blog: Blood Blisters: Another good night's sleep. Eyes very dry during the night. I have now started to develop blood blisters in the cheek of my mouth, which is...
Maureen's blog: Blood Blisters
Maureen's blog: Blood Blisters: Another good night's sleep. Eyes very dry during the night. I have now started to develop blood blisters in the cheek of my mouth, which is...
Maureen's blog: Blood Blisters
Maureen's blog: Blood Blisters: Another good night's sleep. Eyes very dry during the night. I have now started to develop blood blisters in the cheek of my mouth, which is...
Blood Blisters
Another good night's sleep. Eyes very dry during the night.
I have now started to develop blood blisters in the cheek of my mouth, which is very painful and uncomfortable. I will have to go to my doctor as soon as all the ice, snow and frost has disappeared (the cold air makes me very breathless).
Had another good day.
Thank you Lord.
I have now started to develop blood blisters in the cheek of my mouth, which is very painful and uncomfortable. I will have to go to my doctor as soon as all the ice, snow and frost has disappeared (the cold air makes me very breathless).
Had another good day.
Thank you Lord.
Monday, February 6, 2012
Maureen's blog: Dry eyes
Maureen's blog: Dry eyes: I didn't go to bed last night until 01:00, slept very well woke up about 04:00 with my eyes very dry and sore again (this is all because of ...
Dry eyes
I didn't go to bed last night until 01:00, slept very well woke up about 04:00 with my eyes very dry and sore again (this is all because of the lupus).
I am feeling a lot better today not coughing as much, so hopefully the cold is going.
I am still waiting to go into remission (from the lupus), which has happened for a few years before I was actually diagnosed as having lupus. I was told then I have ME (which is similar to lupus).
Today is a new day and tomorrow will be an even better day, thank you Lord.
I am feeling a lot better today not coughing as much, so hopefully the cold is going.
I am still waiting to go into remission (from the lupus), which has happened for a few years before I was actually diagnosed as having lupus. I was told then I have ME (which is similar to lupus).
Today is a new day and tomorrow will be an even better day, thank you Lord.
Sunday, February 5, 2012
Maureen's blog: Lupus Flare
Maureen's blog: Lupus Flare: Had a good day on Friday, went to visit my 95 year old friend in the afternoon. Saturday got up late after going to bed at 02:00. Had a lon...
Saturday, February 4, 2012
Lupus Flare
Had a good day on Friday, went to visit my 95 year old friend in the afternoon.
Saturday got up late after going to bed at 02:00. Had a long soak in the bath to ease all the pain in my body especially my left knee.
Started vomiting again after having my dinner.
The lupus rash is back on my face at the sides of my nose (this is one of the signs of a flare up) which is very sore and painful.
Slept well (the central heating was left on all night) woke up very early this morning because my eyes were so dry they felt very sore and painful (I did lubricate them in the night but not as often as I should).
I have had a good day despite the weather being so cold (it snowed yesterday and it is still on the ground)
Just praying my dinner is going to stay down.
Saturday got up late after going to bed at 02:00. Had a long soak in the bath to ease all the pain in my body especially my left knee.
Started vomiting again after having my dinner.
The lupus rash is back on my face at the sides of my nose (this is one of the signs of a flare up) which is very sore and painful.
Slept well (the central heating was left on all night) woke up very early this morning because my eyes were so dry they felt very sore and painful (I did lubricate them in the night but not as often as I should).
I have had a good day despite the weather being so cold (it snowed yesterday and it is still on the ground)
Just praying my dinner is going to stay down.
Thursday, February 2, 2012
Maureen's blog: Painful left knee
Maureen's blog: Painful left knee: Had a good night's sleep. Woke up with severe pain in my left knee which hasn't gone away today. It could be because it is so cold outside ...
Painful left knee
Had a good night's sleep.
Woke up with severe pain in my left knee which hasn't gone away today. It could be because it is so cold outside (or even a flare up of the lupus).
The gardener and window cleaners all cancelled (the ground is too cold and hard for the gardener to dig and the water kept freezing for the window cleaners).
I haven't done much today because my left knee is so painful and I couldn't even go outside because I wouldn't be able to breathe properly.
I am looking forward to tomorrow as it is a new day.
Woke up with severe pain in my left knee which hasn't gone away today. It could be because it is so cold outside (or even a flare up of the lupus).
The gardener and window cleaners all cancelled (the ground is too cold and hard for the gardener to dig and the water kept freezing for the window cleaners).
I haven't done much today because my left knee is so painful and I couldn't even go outside because I wouldn't be able to breathe properly.
I am looking forward to tomorrow as it is a new day.
Wednesday, February 1, 2012
Maureen's blog: A very cold day
Maureen's blog: A very cold day: Had a good night's sleep despite vomiting before I went to bed. It has been a very very cold day but thank God the cold air did not affect...
A very cold day
Had a good night's sleep despite vomiting before I went to bed.
It has been a very very cold day but thank God the cold air did not affect my breathing when I went out this morning with my son for an appointment he had.
I am feeling a lot better today, still coughing (productive coughing and not because I cant breathe properly) as the cold I have, have not disappeared yet (can't wait for it to go).
The symptoms of the lupus have not gone away, at the moment I have arthritic pain in my left knee, this is something that happens daily but I choose to ignore it. I know my limits as to what I can and cannot do and I try to stick to it other wise I would be aching and feeling very lethargic.
It does not matter how I feel each day I know God is on my side and if He is for me than who can be against me.
It has been a very very cold day but thank God the cold air did not affect my breathing when I went out this morning with my son for an appointment he had.
I am feeling a lot better today, still coughing (productive coughing and not because I cant breathe properly) as the cold I have, have not disappeared yet (can't wait for it to go).
The symptoms of the lupus have not gone away, at the moment I have arthritic pain in my left knee, this is something that happens daily but I choose to ignore it. I know my limits as to what I can and cannot do and I try to stick to it other wise I would be aching and feeling very lethargic.
It does not matter how I feel each day I know God is on my side and if He is for me than who can be against me.
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