It has been another beautiful warm and sunny week. I have to thank God for His beautiful creation and my life.
Each day I have felt very good and I am managing to walk a few more yards (or even meters) without getting breathless.
I still find the fumes from the chlorine in the swimming pool I walk past at the leisure centre is still making me breathless (each time there is a big party of school children I think they add more chlorine).
Saw my Rheumatologist today (Friday), he was very pleased with my progress, there is no change in the lung function test and CT scan of my lungs compared to the last one and the heart scan is okay. He has decided to reduce the dose of the steroid again (I am so happy) I will be having a normal looking face soon instead of a moon shaped face.
Unfortunately I am vomiting a lot again so I will have to see the Gastroenterologist I saw over a year ago. I am praying he won't be suggesting surgery.
The mouth ulcers and blood blisters are back so I will have to see my GP as I forgot to tell my Rheumatologist today.
Felt so good and uplifted after coming back from the hospital that I actually went and did some gardening for about an hour.
Today Sunday I went to church and after having some lunch I actually cleaned the kitchen cupboards and I felt very ashamed to find lots of tins, jars and bottles that were out of date that had to be thrown away.
I am now aching all over and I feel so shattered and fatigued. I really have to remember to pace myself in the future.
I am thanking God for His mercies as they are new everyday and great Is His faithfulness, surely goodness and mercy will follow me all the days of my life.
Monday, March 26, 2012
Sunday, March 25, 2012
Maureen's blog: Loss of memory
Maureen's blog: Loss of memory: Friday night I vomited nearly all night and in between I remember that I hadn't changed the tax disc on my car at the end of February (I am ...
Loss of memory
Friday night I vomited nearly all night and in between I remember that I hadn't changed the tax disc on my car at the end of February (I am praying that the vasculitis is not affecting my memory).
I spent most of the night searching for the new disc, so at 07:00 I was up to check the disc on my car as I really couldn't believe I have been driving around for three weeks illegally.
I actually found the disc at about 08:00 in a box with all my bills (thank you Lord for helping me in time of need and distress).
Saturday was another bright and sunny spring day. Went out to lunch again with Bob (of course the lunch went down to my oesophagus instead of my stomach until night time when it decided to come up again). Went to bed fell asleep knowing I was going to have to vomit at some time. Woke up coughing as I had started to vomit in my sleep, stayed up until 02:00.
Sunday another warm and sunny day, went to church came home and had a nice relaxing day watching carrying on films.
I spent most of the night searching for the new disc, so at 07:00 I was up to check the disc on my car as I really couldn't believe I have been driving around for three weeks illegally.
I actually found the disc at about 08:00 in a box with all my bills (thank you Lord for helping me in time of need and distress).
Saturday was another bright and sunny spring day. Went out to lunch again with Bob (of course the lunch went down to my oesophagus instead of my stomach until night time when it decided to come up again). Went to bed fell asleep knowing I was going to have to vomit at some time. Woke up coughing as I had started to vomit in my sleep, stayed up until 02:00.
Sunday another warm and sunny day, went to church came home and had a nice relaxing day watching carrying on films.
Friday, March 23, 2012
Maureen's blog: Springtime
Maureen's blog: Springtime: Spring is here at last, it seem as if the dark months of winter was never going to go away, but I am happy to say I am looking forward to th...
Wednesday, March 21, 2012
Springtime
Spring is here at last, it seem as if the dark months of winter was never going to go away, but I am happy to say I am looking forward to the bright and sunny days of spring (praying this will be the springtime of my life where I will be coming out of the dark period of lupus and into good health).
Felt quite unwell on Tuesday, went to bed early as I was so sleepy. Woke up in the night with a sore throat.
I got up this morning and I now have a cold.
Hooray! The cold didn't last, although my back is very cold and aching.
Went out to lunch with Bob today (Thursday) and had a very nice meal. It is now night and I am hiccuping and belching and now all my lunch is up again. I continue to vomit until the early hours of Friday morning.
Today I decided to not mope around the house so I went out to the toning suite and had a good time exercising and meeting new people.
I am now hiccuping and belching again so I have to go.
Felt quite unwell on Tuesday, went to bed early as I was so sleepy. Woke up in the night with a sore throat.
I got up this morning and I now have a cold.
Hooray! The cold didn't last, although my back is very cold and aching.
Went out to lunch with Bob today (Thursday) and had a very nice meal. It is now night and I am hiccuping and belching and now all my lunch is up again. I continue to vomit until the early hours of Friday morning.
Today I decided to not mope around the house so I went out to the toning suite and had a good time exercising and meeting new people.
I am now hiccuping and belching again so I have to go.
Sunday, March 18, 2012
Maureen's blog: Joint and muscle pains
Maureen's blog: Joint and muscle pains: Went to bed very late on Friday night. Slept until about 06:30 when I woke up with awful pain in my abdomen, lower back and legs. Got out o...
Saturday, March 17, 2012
Joint and muscle pains
Went to bed very late on Friday night. Slept until about 06:30 when I woke up with awful pain in my abdomen, lower back and legs.
Got out of bed about 10:00 after reading and praying.
Had a long soak in the bath to ease the aches and pains. It is now afternoon and my back is still aching a lot.
Had my dinner and I have started to hiccup and belch.
It is now bedtime and I am vomiting and coughing again which has now left me very breathless.
Sunday am, I have been awake very early as all the pain of the previous day is back with a vengeance but I am not going to let it stop me from going to church.
It is Mothering Sunday here in the UK and I received some beautiful bouquets of flowers (which has left me feeling very special) from my children far and near. I also had a plant and lovely cup cakes at church.
Thank you God for helping me to see and enjoy another year with my family.
Had a good day at home just relaxing and now I have just had a wonderful meal (praying it will stay down).
Got out of bed about 10:00 after reading and praying.
Had a long soak in the bath to ease the aches and pains. It is now afternoon and my back is still aching a lot.
Had my dinner and I have started to hiccup and belch.
It is now bedtime and I am vomiting and coughing again which has now left me very breathless.
Sunday am, I have been awake very early as all the pain of the previous day is back with a vengeance but I am not going to let it stop me from going to church.
It is Mothering Sunday here in the UK and I received some beautiful bouquets of flowers (which has left me feeling very special) from my children far and near. I also had a plant and lovely cup cakes at church.
Thank you God for helping me to see and enjoy another year with my family.
Had a good day at home just relaxing and now I have just had a wonderful meal (praying it will stay down).
Friday, March 16, 2012
Maureen's blog: Toning suite
Maureen's blog: Toning suite: Went to the toning suite this week, I feel so much better for going out and exercising and meeting people. I was very breathless when I go...
Thursday, March 15, 2012
Toning suite
Went to the toning suite this week, I feel so much better for going out and exercising and meeting people.
I was very breathless when I got up off the table at the toning suite today (Wednesday), as I got ready for bed the breathlessness and coughing returned.
Once I was able to breathe properly again i manage to fall asleep until about 02:00 when I woke up with heartburn and backache. I got up to take antacid medication and have a hot drink.
Stayed up until 05:30 reading and praying before going back to bed. Slept until 08:50 when my alarm went off (the sound of a ship's siren). I had to be up because I was having visitors arriving very early.
Had a good day with my prayer partner.
Today I went to the toning suite and I was not breathless and passing the swimming pool was not a problem (thank you Jesus).
Looking forward to having a great weekend.
I was very breathless when I got up off the table at the toning suite today (Wednesday), as I got ready for bed the breathlessness and coughing returned.
Once I was able to breathe properly again i manage to fall asleep until about 02:00 when I woke up with heartburn and backache. I got up to take antacid medication and have a hot drink.
Stayed up until 05:30 reading and praying before going back to bed. Slept until 08:50 when my alarm went off (the sound of a ship's siren). I had to be up because I was having visitors arriving very early.
Had a good day with my prayer partner.
Today I went to the toning suite and I was not breathless and passing the swimming pool was not a problem (thank you Jesus).
Looking forward to having a great weekend.
Monday, March 12, 2012
Maureen's blog: Weekend
Maureen's blog: Weekend: Woke up Saturday morning felt very tired but had no pain in my body. After having a nice relaxing bath Bob and I went to visit a friend in B...
Weekend
Woke up Saturday morning felt very tired but had no pain in my body. After having a nice relaxing bath Bob and I went to visit a friend in Birmingham because she had broken her wrist.
Before going to bed that night all my dinner came up again which had been happening most of last week.
Had a good night's sleep got up Sunday, went to church, came home and had a relaxed day but felt very tired and lethargic.
Before going to bed that night all my dinner came up again which had been happening most of last week.
Had a good night's sleep got up Sunday, went to church, came home and had a relaxed day but felt very tired and lethargic.
Friday, March 9, 2012
Maureen's blog: Chest pains
Maureen's blog: Chest pains: The week started with lots of aches and pains in my body especially my lower back. I have started to go back to the toning suite at a leisu...
Thursday, March 8, 2012
Chest pains
The week started with lots of aches and pains in my body especially my lower back.
I have started to go back to the toning suite at a leisure centre but it is a challenge to walk pass the swimming pool as the smell or fumes caused by the chlorine is affecting my breathing.
I woke up (thursday) with awful chest pains at about 04:00. Stayed in bed until the pain eased enough for me to get up and have a hot drink.
Went back to bed at 06:00, as the pain was easing and I felt very tired and sleepy but I just could not sleep so I read and prayed before getting up again for the day.
Had a pastoral visit from my church pastor and assistant today, which was very uplifting.
Before going to bed last night I took a lot of Antacid medication as the chest pain was back (I wasn't sure if it was trapped wind) I got.
I slept very well as I was so tired, I woke up very early this am (Friday) coughing, Bob was just leaving for work so he made me a cup of tea, which helped to ease the coughing.
I did not go and could not go back to sleep as my legs were aching so much again.
Went to a luncheon club today it was very good and refreshing. The speaker gave a word that the lord gave him and it was for me (Song of Solomon 2:11) The winter is past and; the rain is over and gone. This means for me that the things in the past has gone, everything I have and been going through will be no more (New beginning).
I had a very busy day, I went to the toning suite and then to visit a friend which has left me feeling very tired now and I am hiccuping again.
I have started to go back to the toning suite at a leisure centre but it is a challenge to walk pass the swimming pool as the smell or fumes caused by the chlorine is affecting my breathing.
I woke up (thursday) with awful chest pains at about 04:00. Stayed in bed until the pain eased enough for me to get up and have a hot drink.
Went back to bed at 06:00, as the pain was easing and I felt very tired and sleepy but I just could not sleep so I read and prayed before getting up again for the day.
Had a pastoral visit from my church pastor and assistant today, which was very uplifting.
Before going to bed last night I took a lot of Antacid medication as the chest pain was back (I wasn't sure if it was trapped wind) I got.
I slept very well as I was so tired, I woke up very early this am (Friday) coughing, Bob was just leaving for work so he made me a cup of tea, which helped to ease the coughing.
I did not go and could not go back to sleep as my legs were aching so much again.
Went to a luncheon club today it was very good and refreshing. The speaker gave a word that the lord gave him and it was for me (Song of Solomon 2:11) The winter is past and; the rain is over and gone. This means for me that the things in the past has gone, everything I have and been going through will be no more (New beginning).
I had a very busy day, I went to the toning suite and then to visit a friend which has left me feeling very tired now and I am hiccuping again.
Monday, March 5, 2012
Maureen's blog: Toning
Maureen's blog: Toning: Had a fairly good weekend. Managed to go to church on Sunday. Just the same old aches and pains along with vomiting, not much has changed. ...
Toning
Had a fairly good weekend. Managed to go to church on Sunday.
Just the same old aches and pains along with vomiting, not much has changed.
I am now going back to the toning tables and chairs (the tables and chairs move while I lie or sit, this is low impact exercise) to help with the aches and pains and to tone my body now I have lost nearly a stone in weight since January.
Just the same old aches and pains along with vomiting, not much has changed.
I am now going back to the toning tables and chairs (the tables and chairs move while I lie or sit, this is low impact exercise) to help with the aches and pains and to tone my body now I have lost nearly a stone in weight since January.
Thursday, March 1, 2012
Maureen's blog: Mouth ulcers
Maureen's blog: Mouth ulcers: Visited a friend who is receiving chemotherapy today (wednesday). We had lunch together which I took for us to have. It was a fairly good d...
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